William G. Simon Rosser. Author information Copyright and License information Disclaimer. Corresponding Author: Copyright notice. See other articles in PMC that cite the published article. Abstract Objective Prostate cancer, the second most common cancer among men, typically onsets in middle or older age.
Methods This study used qualitative data from in-depth, semi-structured, one-on-one telephone interviews with 30 GBMPCa recruited from a national cancer support group network, Malecare. Results GBMPCa reported help from friends, family parents, siblings , ex-partners, and paid caregivers.
Conclusions GBMPCa received variable, but generally low, social support during diagnosis and treatment and from a diverse social network, including a prominence of friends and family. Background Prostate cancer PCa is the second most common cancer among men,[ 1 ] and, like other cancers, typically requires extensive social support. Methods This study used a qualitative design—specifically, one-on-one telephone interviews—and was oriented by a thematic analysis[ 26 ] The study was approved by the University of Minnesota Institutional Review Board S Open in a separate window.
Data Collection After a series of demographic questions collected by online survey, the semi-structured interviews covered several domains along the timeline of diagnosis, treatment, and rehabilitation. Data Analysis Data analysis was informed by thematic analysis approaches[ 26 ].
Social support across the treatment timeline Unmet needs A number of men who did not have access to a gay support group, locally, reported wanting it. Social Network for Support Before Treatment Help from others in their social networks ranged from very involved to uninvolved. Social Support During Treatment Instrumental support During treatment, men undertaking radiation and other treatments reported little instrumental support and less than to men with surgery. Support Network for Instrumental Support Most of the partnered men who had surgery got instrumental caregiving from their partners.
Emotional support Emotional support represented the next most common component of social support during treatment. Strengths and Weaknesses Although our goal was not to sample stratified by race or sexual orientation, we caution saturation was not reached across race or sexual orientation and have not made explicit comparisons of differences in by these factors. Acknowledgments Sponsors: References 1. Cancer statistics, A Cancer Journal for Clinicians.
Paterson C, et al. What is the mechanism effect that links social support to coping and psychological outcome within individuals affected by prostate cancer? Real time data collection using mobile technology. Eur J Oncol Nurs. Exploring the relationship between coping, social support and health-related quality of life for prostate cancer survivors: Benedict C, et al. Positive and negative mood in men with advanced prostate cancer undergoing androgen deprivation therapy: Colloca G, Colloca P.
J Cancer Educ.
Blank TO. Gay men and prostate cancer: J Clin Oncol. Quinn GP, et al. The effects of attachment and outness on illness adjustment among gay men with prostate cancer. Compton DLR. The Family and Gay Men and Lesbians. Baumle AK, editor. International Handbook on the Demography of Sexuality. Springer; New York: Feinberg L, et al. Insight on the Issues.
Valuing the Invaluable: NAC , N. Caregiving in the US, Patterson CJ. Family Relationships of Lesbians and Gay Men. Journal of Marriage and Family. Oswald RF. Resilience within the family networks of lesbians and gay men: Intentionality and redefinition. Jan M, et al.
Prostate Cancer in Gay, Bisexual, and Other Men Who Have Sex with Men: A Review
The roles of stress and social support in prostate cancer mortality. Scand J Urol. Kroenke CH, et al. Social networks, social support, and survival after breast cancer diagnosis. Measuring social support: J Behav Med. Berkman LF. Social Work in Health Care. Social integration, social networks, social support and health.
Berkman LF, Kawachi I, editors. Social epidemiology. House JS, et al. Measures and concepts of social support. Syme SCSL, editor. Social support and health. Cohen S. Social relationships and health. Am Psychol.
Voerman B, et al. Determinants of participation in social support groups for prostate cancer patients. Mehnert A, et al. A qualitative study. J Sex Marital Ther ; Sexual orientation and testing for prostate and colorectal cancers among men in California. Med Care ; Jackson L: Surviving yet another challenge. J Gay Lesbian Psychother ; 9: The effect of ethnicity and sexual preference on prostate-cancer-related quality of life. Nat Rev Urol ; 9: Pilot study on quality of life and sexual function in men-who-have-sex-with-men treated for prostate cancer.
What is the National LGBT Cancer Project?
Miller M: Identity and prostate cancer: Comments on a messy life. Mitteldorf D: Psychotherapy with gay prostate cancer patients.
Preliminary study with bicalutamide in heterosexual and homosexual patients with prostate cancer: A possible implication of androgens in male homosexual arousal. BJU Int ; Parkin RP, Girven H: Together with prostate cancer. Perlman G: Prostate cancer, the group, and me. Perlman G, Drescher J: What gay men and those near and dear to them need to know about prostate cancer.
Santillo VM. Prostate cancer diagnosis and treatment of a year old gay man. Prostate cancer and the gay male. Schaffner B: Prostate cancer at age The experiences of gay and bisexual men diagnosed with prostate cancer: Results from an online focus group. Eur J Cancer Care Engl ; Fear of recurrence: The importance of self-efficacy and satisfaction with care in gay men with prostate cancer. Psychooncology ; Diagnostic and outcome differences between heterosexual and nonheterosexual men treated for prostate cancer. Urology ; Cornell D: A gay urologist's changing views of prostate cancer.
J Gay Lesbian Pyschother ; 9: Voicing the concerns of a hidden population. J Mens Health ; 5: Goldstone SE: The ups and downs of gay sex after prostate cancer treatment.
Higgins G: A gay man and his partner face his prostate cancer together. Martinez R: Prostate cancer and sex. J Urol ; Harris J: Living with prostate cancer: One gay man's experience. Dowsett GW: One gay man's wrangle with prostate cancer. Reprod Health Matters ; Binghampton, NY: National Cancer Institute: Prostate Cancer.